The NB Handbook

The Children’s Neuroblastoma Cancer Foundation (CNCF) is proud to launch the online version of the CNCF Handbook for Parents of Children with Neuroblastoma.  The handbook was developed by and for families affected by neuroblastoma.

Please click here to explore the handbook!  

Also, please don't forget to tell others about the handbook.  Click here to find out how to spread the word.

Upcoming Events

September 5, 2008
Life. Through the eyes of a child living with neuroblastoma.  The Fort Worth Community Arts Center will be hosting the opening night of this aptly named art collection.  Photography by Geno Loro focuses on children with neuroblastoma.  This awareness event will mark the beginning of a 3 month showing. Find out more here.
September 9, 2008 - 12:00 PM CST
Online Seminar - Sodium Thiosulfate in Preventing Hearing Loss.  Dr. David Freyer from the Children's Hospital of Los Angeles will be presenting information regarding the research that led to this trial and provide an overview of the trial and its eligibility.  Register for this live online seminar here.
September 24, 2008
Stand-Up for Life
Join us at The Improv in Addison, Texas at 8:00 PM for a night of comedy with comedians Aaron Aryanpur, Peter Barrera, Justin Foster and hosted by Honor Shearer.  All proceeds from the even will benefit the CNCF.  Tickets are available at http://www.improv.com/ or at the door.

Articles

An interesting article was recently published in the January 15, 2008 edition of Clinical Cancer Research.  The article, “Sodium Thiosulfate Administered Six Hours after Cisplatin Does Not Compromise Antineuroblastoma Activity”(1)...

Videos

A touching video on neuroblastoma.  All children festured in this video have been touched by neuroblastoma.  It is an important look into what these children need.
Our YouTube channel is here to share our stories, provide hope and awareness, and to provide important medical interviews about neuroblastoma and it's treatment. .

Recommended Hosts

Join the CNCF on Facebook here you will find more ways to connect to make a difference.>
Yes, CNCF is on YouTube as well. Please visit, watch some of our spectacular videos, and share your own.
Do you have space on MySpace. So do we. Visit us often.
Did you miss some of our educational conferences and seminars. Get them on Google Video.

Welcome!

Welcome to the Children's Neuroblastoma Cancer Foundation website!

Your child has been diagnosed with neuroblastoma. Welcome, you’re not alone.  The Children’s Neuroblastoma Cancer Foundation (CNCF) supports families living with this disease. We’re the primary source for the most current, reliable information and resources available.  Providing a forum for patients and family members, our educational services bring together clinicians, researchers and medical experts.

Please join hands with ours.

CNCF educates the public of a disease lacking in awareness and funding. We serve as an advocate for appropriate legislation, as well as a liaison between healthcare providers and families.
And of course, hope. We bring that too. Emotional support is shared amongst all whose lives are affected. Hope is what unites us. It’s what keeps us fighting. It keeps us from losing sight of our overall mission. To find a cure.

We can’t change the circumstances. But together, we can change the outlook.

We know what you’re going through. CNCF is made up of families just like yours. We care. And we’ll keep you informed.

FAQs. Fundraising options. Online forums. The latest research overviews. Strategies to help you cope. Let our website be your best resource. Log on and sign up for email updates and newsletters. We’ve even created a virtual medical file you can download to help document doctor visits and test results.

CNCF Support Services

  • Maintain a forum for patients and family members, including educational services bringing together clinicians, researchers and other medical experts.
  • Share information concerning symptoms, diagnosis, treatment and care.
  • Provide emotional support for parents and siblings.
  • Maintain a website and newsletter for ongoing communication.
  • Provide tools to simplify medical record-keeping.

What's New

  • Seminar on Sodium Thiosulfate in Preventing Hearing Loss - Sign up now

    Dr. David Freyer from Children's Hospital of Los Angeles is the study chair for the new COG study "Sodium Thiosulfate in Preventing Hearing Loss in Young Patients Receiving Cisplatin for Newly Diagnosed Germ Cell Tumor, Hepatoblastoma, Medulloblastoma, Neuroblastoma, or Osteosarcoma." The chemotherapy drug cisplatin is a very important...
    Posted to General (Forum) by Mark Dungan (Sydney's Daddy) on 08-25-2008
  • Online Seminar - Preventing Hearing Loss

    Dr. David Freyer from Children's Hospital of Los Angeles is the study chair for the new COG study "Sodium Thiosulfate in Preventing Hearing Loss in Young Patients Receiving Cisplatin for Newly Diagnosed Germ Cell Tumor, Hepatoblastoma, Medulloblastoma, Neuroblastoma, or Osteosarcoma." The chemotherapy drug cisplatin is a very important...
  • Re: Anyone else have a child who also had/has OMS?

    I am new to this site, I wish I had found it months ago! Our daughter, Ashlee Kate, is 3 yrs. old and was diganosed with NB stage 2a in Dec. 07 after weeks of misdiagnosis because they were focusing on her sudden inability to keep her balance, extreme iritablility, and while hospitalized lost the ability to walk or even sit up unsupported. We were discharged...
    Posted to General (Forum) by jwelbern on 08-24-2008
  • Re: First day of chemo... and more

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    Posted to Medical (Forum) by Donna Ludwinski on 08-24-2008
  • Re: First day of chemo... and more

    Hang in there, Eileen. I know this time stinks...it's the worse time on earth. Your little one will amaze you though, and he will give you the strength you need to fight this. Honest. The doctors have to spell out the risks. They have to give you the negatives so that you will buy in to treatment. Treatment is ugly and at times it feels uglier than...
    Posted to Medical (Forum) by Katy on 08-23-2008

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