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Advocacy

Advocacy

 

COMPASSIONATE CARE ACT OF 2005

 

 

Although one of the goals of the Children’s Neuroblastoma Cancer Foundation is to help find a cure for neuroblastoma and other solid tumor cancers in children, unfortunately many of them will lose their battle.

 

In an effort to support all of our children and their families who will sadly walk this path, we have joined with other organizations in a grassroots effort to promote awareness of the Compassionate Care Act of 2005 and seek your action by writing a letter to your representative for passage of this important piece of legislation.

 

House Version – HR  963

Sponsor: Deborah Pryce (OH-15)

Cosponsors: David Hobson (OH-7), Michael McCaul (TX-10), John Murtha (PA-12)

 

Senate Version – S 174

Sponsor: Mike DeWine (OH)

Co-Sponsors: Christopher Dodd (CT) and Patty Murray (WA)

 

Below is an overview of the components of the bill:

TITLE I--GRANTS TO EXPAND PEDIATRIC PALLIATIVE CARE SERVICES AND RESEARCH

Sec. 101. Education and training.

Sec. 102. Grants to expand pediatric palliative care.

Sec. 103. Health professions fellowships and residency grants.

Sec. 104. Model program grants.

Sec. 105. Research.

TITLE II--PEDIATRIC PALLIATIVE CARE DEMONSTRATION PROJECTS

Sec. 201. Medicare pediatric palliative care demonstration projects.

Sec. 202. Private sector pediatric palliative care demonstration projects.

 

Sec. 203. Authorization of appropriations.

 

A sample letter is attached for your use along with a Press Release from Congresswoman Deborah Pryce’s office.

 

Sample letter word doc.

Press Release pdf

 

Thank you for helping.