Dr. Chrystal Louis from Texas Children's Cancer Center Center for Cell and Gene Therapy presents information regarding cell and vaccine therapies for neuroblastoma. This presentation was made at the Children's Neuroblastoma Cancer Foundation Neuroblastoma...

Dr. David Freyer from Children's Hospital of Los Angeles is the study chair for the new COG study "Sodium Thiosulfate in Preventing Hearing Loss in Young Patients Receiving Cisplatin for Newly Diagnosed Germ Cell Tumor, Hepatoblastoma, Medulloblastoma...

This year we will be compiling another cookbook to raise money for the CNCF (Children's Neuroblastoma Cancer Foundation) for much needed neuroblastoma research , education, awareness, support, and advocacy initiatives. The Lunch for Life Cookbook...

For those of you who were unable to attend the recent CNCF conference, we'd like to let you know that the NB Parent Handbook is now available on the CNCF website at www.nbhope.org/handbook. The Handbook has been prepared by NB parents, with the goal of sharing with others what they have learned during their children's NB treatments. The list of contributors is too numerous for me to thank individually ...

Pryce applauded the signing of the legislation she authored titled the Caroline Pryce Walker Conquer Childhood Cancer Act. The statement said the legislation authorizes $150 million over five years for pediatric cancer research and outreach, and reaffirms our nation's commitment to eradicating the number one cause of death by disease for children. ...

We are asking everyone to help us spread the word. We are calling for a "bum rush" of all of the social media you can get your hands on, ultimately directing people to the CNCF's Neuroblastoma Handbook. We are asking you to blog about the handbook, write entries on your caringbridge sites, and to include links and badges on your websites. The idea is to create as much awareness as we possibly can about the handbook. Ideally we want it to be in every family's hands but we need your help to let everyone know that it exists. It isn't just for us but for all families both now and in the future who land in our footsteps....

The Senate Appropriations Committee passed its 2009 funding bill for the FDA late last week (Senate Report 110-426). In the bill, they encourage FDA to prioritize review of new treatments and clinical trials for high-risk neuroblastoma and other pediatric cancers and report back to Congress on progress made. The House version of the bill includes a similar provision. ...

An online charity auction on ebay is benefiting the CNCF. This autographed guitar was donated in Caleb Larson's memory to benefit neuroblastoma research through the Children's Neuroblastoma Cancer Foundation. Donated in support of the 1st Annual Cowboyin' for a Cure in Graham, Texas, this guitar is signed by many of country music's greats. Pleas help spread the word about this auction and make sure to bid....

2008 NB CONFERENCE SCHEDULE Thursday, 7/17/08 Event Time Room Early Registration 6:00 pm - 9:00 pm REGENCY EFG Welcome Dinner Buffet (Everyone) 6:00 pm - 9:00 pm REGENCY EFG Friday, 7/18/08 Event Time Room Registration 7:00 am - 9:00 am REGENCY FOYER...

Chapters [1] [2] [3] [4] [5] [6] [7] [8] [9] [10] [11] [12] [13] [14] Download entire Handbook in single PDF file: NB Handbook 7-2008 CNCF Handbook for Parents of Children with Neuroblastoma Disclaimer Acknowledgments Navigating Neuroblastoma and This...

Download printer-friendly version: 102 NB Tumor Pathology and Genetics WHAT IS NEUROBLASTOMA? Part 2: Tumor Pathology and Genetics NB is sometimes referred to as a “heterogeneous” disease because of the wide range in its behavior in different children...

Quick Reference Chart of Abbreviations and Acronyms Download printer-friendly version: 1401 Common Abbreviations 123-I MIBG isotope of iodine with quick half-life (13 hours) connected to MIBG, used for scanning 131-I MIBG isotope of iodine with longer...

One of the most interesting revelations of the 2008 ANR in Chiba, Japan from a parent of a child with neuroblastoma was the realization that the rules are always changing. I can not tell you how many times something I had previously accepted as fact was now coming into question. In the neuroblastoma research world the old adage "the more you learn the less you know" is more fact than fiction. Throughout the conference there were several examples of this type of revelation coming to fruition. None was more interesting than an abstract and presentation by Thorsten Simon from Children's Hospital, University of Cologne, Germany. ...

As many parents know, the Advances in Neuroblastoma Research (ANR) Congress was held in Chiba, Japan during May 21-24, 2008. This was the first time it has been held in Asia. The ANR is held every two years in a new location throughout the world. In 2010 in will be held in Sweden. The ANR is an opportunity for neuroblastoma researchers and clinicians to meet, discuss and share the most current research in the world of neuroblastoma. During the 2008 ANR over 390 neuroblastoma research abstracts were submitted. All of them were reviewed and scored by at least 7 authorities. The event was attended by almost 500 researchers and clinicians from over 35 countries. The ANR is, by far, the world's largest neuroblastoma specific research conference and usually attracts all of the world's leading neuroblastoma researchers....

Download printer-friendly version: 104 Questions for Doctors at Dx You have the right to have all questions about your child’s diagnosis, treatment, prognosis, and other available treatments answered to your satisfaction, keeping in mind that many questions...