Events

Allie and Friends Golf Classic 2009

Mark Dungan (Sydney's Daddy) — Wed, 03 Dec 2008 18:18:00 GMT

Join Ryan Diem of the Indianapolis Colts on Monday, May 4, 2009 for the 5th annual “Allie & Friends Golf Classic” at Boulder Ridge Country Club in Lake in the Hills, IL

The 2008 event raised over $170,000 to help find a cure for neuroblastoma. Coach Tony Dungy of the Colts was our guest speaker for dinner at the Night Before the Allie. His inspiring words and strength filled us with the determination to make a difference for the children with neuroblastoma and their families.

We hope to surpass this mark and raise even more in 2009 for neuroblastoma research, education and awareness. Visit the Allie & Friends website for continued updates and information: www.allieandfriends.org

Ryan Diem of the Super Bowl Champions, Indianapolis Colts will be leading the golfers this year in the 3rd annual Allie & Friends Golf Classic. “I am extremely proud to be a part of the Allie & Friends Golf Classic. Pediatric cancers, and especially neuroblastoma, present arduous challenges and can be devastating for the families who have to endure them. I believe through hard work, research and donations made possible through events like these, we will provide hope for the families in these desperate situations. I’m thrilled to be building a solid and lasting relationship with the CNCF and the Allie & Friends Golf Classic.”

- Ryan Diem
Indianapolis Colts

All proceeds from the event will benefit the Children’s Neuroblastoma Cancer Foundation (CNCF)

Please visit the Allie & Friends website to view the pictures from our prior events: www.allieandfriends.org

Comics for a Cure

Mark Dungan (Sydney's Daddy) — Tue, 02 Dec 2008 16:52:00 GMT

January 9, 2009 at the Cutler Majestic Theater in Boston, MA

Join comedians Gary Gulman, Nick DiPaolo, Joe List, Kevin Knox and Kelly MacFarland as they celebrate the families and medical staff who support the many children who are diagnosed with cancer. Proceeds will benefit the Children's Neuroblastoma Cancer Foundation to fund reseach and clinical trials as well as educate and support families who have been affected by this deadly disease.For more information and to purchase tickets, go to: www.comicsforacure.org

To make a donation, click on Donate https://secure.groundspring.org/dn/index.php?aid=25693 and select: Comics for a Cure.

Comics for a Cure Press Release

Scramble for a Cure

Mark Dungan (Sydney's Daddy) — Wed, 01 Oct 2008 11:13:00 GMT

On Friday, October 24th, 2008 Jeffrey Cummings is hosting a golf tournament at The Golf Club at Castle Hills to benefit the Children’s Neuroblastoma Cancer Foundation. Event Name: Lunch for Life and Children's Neuroblastoma Cancer Foundation Location...(read more)

Stand Up for Life

Mark Dungan (Sydney's Daddy) — Wed, 17 Sep 2008 10:48:00 GMT

Stand Up for Life

WHEN: September 24, 2008 8:00 PM (Doors open at 7:00 PM)

WHERE: Lakewood Theater, Dallas, TX

WHO: Aaron Aryanpur, Peter Barrera, Justin Foster, and hosted by Honor Shearer

TICKETS: $25 - ON SALE NOW!
Tickets are available

by calling 214-709-7199 or 214-821-7469
by emailing mdungan@lunchforlife.org
or at the door

Comedians take a "stand" against neuroblastoma by donating their time and considerable talent towards our worthy cause. Bring you friends and join us for night filled with hilarious comedy and laughter. All proceeds support the research and educational initiatives of the Children’s Neuroblastoma Cancer Foundation.

The PDF version of the event poster can be found below.

StandUpForLifePoster_Lakewood.pdf

Life - Through the Eyes of a Child Living with Neuroblastoma

Mark Dungan (Sydney's Daddy) — Fri, 22 Aug 2008 15:17:00 GMT

This portrait series by photographer Geno Loro Jr. juxtaposes the bitter truth and beautiful frailty of lives touched by this little-known, little-understood form of childhood cancer. At first glance, the children portrayed are deceptively ordinary – they play dress-up, they laugh, and some gaze curiously into the camera. But a closer look reveals an unexpected wisdom in the eyes of each – a wisdom that comes from seeing much, suffering much, during a life that’s barely started. A wisdom that is, at times, laced with sorrow, and at others, with hope. A wisdom that will leave you with no doubt that these children are unlike any you have seen before – yet so much like any child you’ve ever known. “Life – Through the Eyes of a Child Living With Neuroblastoma” is part of an effort by the Children’s Neuroblastoma Cancer Foundation (CNCF), along with Cook Children’s Medical Center and the University of North Texas Health Science Center (UNTHSC), to raise public awareness of this dramatically overlooked disease. Throughout the years Cook Children’s has been the first choice for treatment of children with neuroblastoma in North Texas. With a highly specialized focus on this cancer, the neuroblastoma program at the Hematology and Oncology Clinic of Cook Children’s offers even more hope to children touched by this deadly disease, both in Fort Worth and around the globe. Recently, with the appointment of W. Paul Bowman, M.D. as the department chair of pediatrics for the Texas College of Osteopathic Medicine at the University of North Texas Health Science Center, groundwork has been laid to bring cutting-edge neuroblastoma cancer research to the forefront. A Neuroblastoma Grand Rounds has already been planned and a neuroblastoma symposium is on the horizon. These newly forged relationships complete a trinity of patient support, clinical care, and research – which will only serve to hasten a cure. We often say that art imitates life. As you will see from these stunning photographs, in this case art inspires life. ...(read more)

Art Exhibition benefiting Neuroblastoma Research

Mark Dungan (Sydney's Daddy) — Wed, 30 Jul 2008 19:04:00 GMT

Ally Takeuchi is the creator and curator of the show. Ally is the mother of Ava Jaymes Cipriani who was diagnsoed with neuroblastoma in March of 2006. Sadly Ava lost her battle with neuroblastoma in April of 2007. More information about beautiful little ava can be found at http://awishforava.com/. This is Ally's second exhibition at the gallery. As the curator, Ally has arranged for a portion of the proceeds to go to Lunch For Life (http://www.lunchforlife.org) a charity that raises awareness and research dollars towards a cure for neuroblastoma, a deadly pediatric cancer. The title of the exhibition is "get the lead out." THe exhibition can be viewed online at http://blackmariagallery.com/exhibitions/get_the_lead_out/. If you have interest in purchasing any of the artwork arrangements can be made by contacting the gallery. ...(read more)

Cowboyin' 4 the Cure

Mark Dungan (Sydney's Daddy) — Wed, 11 Jun 2008 11:25:00 GMT

TO BENEFIT CHILDREN’S NEUROBLASTOMA CANCER FOUNDATION

YOUNG COUNTY ARENA
GRAHAM, TEXAS
AUGUST 2ND, 2OO8

SCHEDULE OF EVENTS

8AM-5K RUN/WALK

$20 EARLY REGISTRATION/$25 DAY OF
MAY REGISTER EARLY BY CALLING ALICIA OR JOSH AT GRMC WELLNESS CENTER 940-549-3400

10AM-3PM MOUNTED SHOOTING

12 NOON-MEMORIAL/HONORARY BALLOON RELEASE

FOR CHILDREN WHO HAVE DIED FROM CANCER, HAVE HAD CANCER IN THE PAST, OR ARE CURRENTLY IN TREATMENT

3PM-ENTERTAINMENT/GUEST SPEAKERS

4PM-MUTTON BUSTIN’

EARLY SIGN-UPS. PLEASE CALL BRANDI @ 940-452-3822 FOR MORE INFORMATION.
6 & UNDER
LIMITED TO 30 ENTRIES (SIGN-UP EARLY!)
$20/CHILD (SPECIAL PRICING AVAILABE FOR MORE THAN 1 CHILD IN A FAMILY)
BUCKLE AWARDED TO TOP RIDER

5:30-RANCH RODEO

$1,000/5 MAN TEAM; 60% PAYBACK
FOR MORE INFORMATION YOU MAY CONTACT BARY CLOWER @ 940-452-1948
ENTRIES LIMITED (ENTER YOUR TEAM NOW!)

7PM-4 WHEELER & TRAILER RAFFLE DRAWINGS

YAMAHA GRIZZLY 450 4X4 4-WHEELER DONATED BY THE EMPLOYEES OF PLS, INC.
6X10 TRAILER WITH RAMP DONATED BY THE KIWANIS CLUB OF GRAHAM
FOR TICKETS PLEASE CALL BRANDI @ 940-452-3822

SILENT AUCTION-OPPORTUNITIES TO BID THROUGHOUT THE DAY

CONCESSIONS AVAILABLE ALL DAY

ENTRANCE INTO EVENT IS FREE-DONATIONS ACCEPTED & APPRECIATED

YOUNG COUNTY ARENA
GRAHAM, TEXAS
AUGUST 2ND, 2OO8

Purple Cow Shake-a-thon 2008

Mark Dungan (Sydney's Daddy) — Tue, 13 May 2008 10:55:00 GMT

May 27, 2008 11:00 AM – 9:00 PM

DALLASPurple Cow RestaurantPreston Royal Shopping Center110 Preston RoyalDallas, TX 75230

PLANOPurple Cow RestaurantLakeside Market Shopping Center5809 Preston Rd.Plano, TX 75093

FORT WORTHPurple Cow RestaurantChapel Hill Shopping Center4601 W. FreewayFt. Worth, TX 76107

Lunch for Life Purple Cow Shake-A-Thon Questions & AnswersThe Lunch for Life Purple Cow Shake-A-Thon is unique fundraising opportunity with all proceeds benefiting childhood cancer research through the Children’s Neuroblastoma Cancer Foundation (CNCF). It’s simple and fun! On May 27, 2008 between the hours of11:00 AM and 9:00 PM the Purple Cow restaurants have agreed to donate 15% of their revenues to the Children’s Neuroblastoma Cancer Foundation. Please invite your friends to come and have dinner that night. There will be tons of prizes including a brand new computer and several Apple iPods. Individuals, groups and families can also help increase donations by obtaining sponsors for the number of shakes served at the Shake-A-Thon event in advance of the event.

Purple Cow Shake-a-thon flyer 2008

Purple Cow Shake-a-thon Participant Kit

Purple Cow Shake-a-thon Business Cards - Front

Purple Cow Shake-a-thon Business Cards - Back

Here’s how it Works

Set your own personal goal and then collect and raise funds for the Shake-A-Thon based upon the number of milkshakes served during the Lunch for Life Purple Cow Shake-A-Thon.

Set a goal and work to meet your goal! You can obtain pledges based upon the amount of Purple Cow Milkshakes that you anticipate being served or you can ask for a fixed pledge amount for your participation.

Sponsors can be friends, family, co-workers, classmates, friendly neighbors, etc. Anyone that you can think of that wants to help children with cancer – one shake at a time! (Children must be supervised by a parent or guardian when seeking donations) Prizes

The child or family obtaining the most money in pledges will receive a brand new Apple iPod Classic.

Each Purple Cow restaurant has designated a local area school. The Dallas location has selected Christ the King School, the Plano location has selected Prestonwood Christian Academy and Fort Worth has selected Southwest Christian School. The designated school that generates the most sales for their location will win a brand new computer.

Each location will be hosting a five question trivia quiz. Stop by, order some food, and fill out the trivia quiz. If your correct quiz is selected from the drawing at your store you will win an iPod nano.

Fund Raising Tips

Educate your potential sponsors about neuroblastoma, Lunch for Life, the Children’s Neuroblastoma Cancer Foundation, and the mission of the organization.
Ask your co-workers, friends, and relatives to sponsor you in this great cause.
Seek out companies that have matching gift programs. Ask around to see if they will match your goal.
Promote easy donations by encouraging a donated fixed amount (also called a flat pledge). Sponsors can simply donate any contribution amount up front.
You can seek sponsorship in honor or memory of a loved one. Let your potential sponsors know why the Shake-A-Thon is meaningful to you.
Design your own sign with your goal and mark your progress.
Create enthusiasm around your event by encouraging others to get involved and to help you raise money for CNCF!

Return pledge form and all collected checks promptly to:Children’s Neuroblastoma Cancer Foundation, PO Box 6635, Bloomingdale, IL 60108... For more information call 1-817-846-6085 or email Mark Dungan at mdungan@LunchforLife.org. www.LunchforLife.org

Amazing Grace Golf Tournament

Mark Dungan (Sydney's Daddy) — Fri, 25 Apr 2008 16:22:00 GMT

May 3,2008 When: Saturday, May 3th 2008 Where: Houston National Golf Club 16500 Houston National Blvd Houston, Texas 77095 Time: Registration: 6:30 AM Practice: 7:00 - 7:45 AM Shotgun Start: 8:00 AM Entry Fee: $190.00 / player Entry Fee includes green...(read more)

Farr Jog-a-thon

Mark Dungan (Sydney's Daddy) — Sat, 08 Mar 2008 16:16:00 GMT

Quynh Gibney, Candy Harrison and David Gibney. Quynh & David are the parents of Christopher Gibney who passed away on December 19th, 2007 from NB. Candy, a teacher at Farr Elementary School, organized a Jog-A-Thon fund raiser with the Farr Elementary PTA in honor of Christopher to benefit the CNCF. They raised over $3,000. Farr Elementary School is in Escondido, California near San Diego. David is a band teacher at Farr. The fund raiser had the support of the Escondido Union School District and students and families from several schools in the diverse community participated. The event was held at Mission Middle School on Saturday, March 8th, 2008....(read more)

NB Conference 2006

Mark Dungan (Sydney's Daddy) — Fri, 08 Feb 2008 16:08:00 GMT

2006 NB Conference

Dear NB Families:

The Children’s Neuroblastoma Cancer Foundation (CNCF) will not be holding a conference in 2006. This decision is based in part on obtaining the necessary funding, the time needed to secure such funding and also allow current research efforts time to mature in order to provide our families with the most up-to-date information.

The conferences will now be held every odd year starting in 2007. It will permit CNCF and interested families to hold fundraising events that will ensure the continuation of this forum of information sharing and family support. We feel the NB Conference is an integral part of the journey we are on. We are therefore seeking your help in holding fundraising projects to cover the costs of the conference and allow all families an equal opportunity to attend.

We anticipate a bigger and better conference in 2007 and will work to implement the many suggestions we have received over the years. Your input has been invaluable to us and serves as our building blocks for successful programs.

We would like to thank you for your prior attendance and look forward to seeing again in 2007.

If you are interested in holding a fundraising event for the conference, please contact us at: info@cncf-childcancer.org.

Thank you,

Patricia Tallungan
President
Children’s Neuroblastoma Cancer Foundation

NB Conference 2007

Mark Dungan (Sydney's Daddy) — Fri, 08 Feb 2008 16:08:00 GMT

Hyatt Regency McCormick Place
2233 S. Martin Luther King Drive
Chicago, IL 60616
312-567-1234

The 5th Neuroblastoma Conference has come to an end. We would like to thank all of the guest speakers for joining us and taking time out of their busy schedules to be a part of this program.

A special thank you goes out to Kenna Anderson & Candy Daly for coordinating the Kids Room activies and to all of their friends and family. Thank you to all the volunteers who helped out taking care of the the children while the parents were in the meetings.

Many, many thanks to:

Denise Persons
Stacy Wilson
Deb Maher, Coins4Kids
Kevin & Andrea Kane
Donna Ludwinski, co-editor of the Parent Handbook
Jennifer Click, co-editor of the Parent Handbook
Shirley Staples, co-editor of the Parent Handbook
Shelly Adams
Bart Faber Family
Anonymous Donor for a grant for travel expenses for our families
Sign-A-Rama

Melanie Stygar, Kate DeMaster and the entire staff at the Hyatt for making our stay so wonderful.

And to all of our NB Families.

NB Conference 2005

Mark Dungan (Sydney's Daddy) — Fri, 08 Feb 2008 16:06:00 GMT

2005 NB Conference

CNCF would like to thank the following individuals and organizations for their help in making the 2005 NB Conference possible and a great success again:

A. J. and Yvette Nafso
Sigma Beta Sorority
Jonathan Powell Hope Foundation
Full Circle Foundation
Anonymous Donor (for travel expenses for families)

Kenna Anderson (CNCF Vice President) and Candy Daly for organizing the Kids Room activities
All of our volunteers in the Kids Room

Theresa Lockler (Angel Parents Group)

Sharon Rezac, Nicole Glenn

Tracy Hillesheim, Sharon Lundin and all the staff at the Hyatt Regency O'Hare

We would also like to thank all of our guest speakers for taking time out of their busy schedules to be a part of this wonderful program:

Dr. Susan Cohn
Dr.Darrell Yamashiro
Dr. Michael LaQuaglia
Dr. Lisa McGregor
Dr. Wayne Furman
Dr. C. Patrick Reynolds
Dr. Clarke Anderson
Dr. Clare Twist
Dr. Jean Tersak
Michelle Brown, PhD
Dr. Kara Kelly
Darci Sims
Nick Snow

Below are some pictures that we hope you will enjoy.

NB Conference 2004

Mark Dungan (Sydney's Daddy) — Fri, 08 Feb 2008 16:05:00 GMT

2004 Children's Neuroblastoma Conference

The 3^rd Children’s Neuroblastoma Conference, 2004, was a tremendous success. Over 200 parents and grandparents attended this year’s program. Again we have to thank the Kemper Educational and Charitable Fund for the grant to make it all possible.

We want to especially thank the dedicated group of doctors who work so hard to unravel the mysteries of this disease and who study the emotional and psychological effects of families touched by cancer and how to cope with losing a child. Their commitment to our children, parents, brothers and sisters and extended family has not gone unnoticed.

The impressive list of guest speakers included:

Dr. Audrey Evans, Children’s Hospital of Philadelphia

Dr. C. Patrick Reynolds, Children’s Hospital Los Angeles

Dr. Charles Sklar, Memorial Sloan Kettering Cancer Center

Dr. Robert Seeger, Children’s Hospital Los Angeles

Dr. Heidi Russell, Texas Children’s Hospital

Dr. Michael Jensen, City of Hope

Dr. Clarke Anderson, Children’s Hospital Los Angeles

Dr. Doug Strother, Alberta Children’s Hospital

Dr. Steven Hirschfeld, Food & Drug Administration

Dr. Michael Pranzatelli, Southern Illinois University, School of Medicine

Melissa Alderfer, PhD, Children’s Hospital of Philadelphia

Dr. Brian Delaney, Dana Farber Cancer Institute

Dr. Aurora Sanfeliz, Dana Farber Cancer Institute

Ms. Melanie Goldish, SuperSibs

Mr. Richard Noose, Neuroblastoma Survivor

The topics for the conference covered low, intermediate and high risk treatment options; long term side effects; OMS and neuroblastoma; T-cell and vaccine therapy treatments; a new study on bone metastases; the emotional effects of having a child with cancer; taking care of the siblings of children with cancer; the grieving process and a survivor’s story of life after neuroblastoma.

A very special thank you goes out to Kenna Anderson and Candy Daly for organizing the Kids Room activities for 80 children. And to all of the wonderful volunteers who participated in caring for the kids, including Dina Kapani - Make a Wish Foundation, Sandy Ring - Super Sibs, Marilyn Rabb Foundation, Noreen O'Connor and friends, Chevelle Bailey - Uhlich Children's Advantage Network and Ann Folan and friends.

I know they were tired!

And thank you to:

Mike Mauthe, our stiltwalker, balloon maker.

Jennifer Kwasinski, for all the posters of the children.

Sean McKeown, WGN-TV cameraman for volunteering his time to videotape the children in the Kids Room.

Colby Cashiola, Hyatt convention manager for making it a perfect event.

Andrew Hardt, Windy City Mobile DJs

Jill Norton, Photographer

Jim Monroe from Connie’s Pizza for their donation of food at our pizza party.

And thank you to our financial supporters:

Children’s Memorial Hospital, Division of Hematology/Oncology, Chicago

An Anonymous Donor of $5,000 for financial assistance to bring additional families to the conference.

The Barton Faber Family

NB Conference 2003

Mark Dungan (Sydney's Daddy) — Fri, 08 Feb 2008 16:04:00 GMT

CHILDREN’S NEUROBLASTOMA CONFERENCE 2003

The Children’s Neuroblastoma Cancer Foundation (CNCF) sponsored its second Children’s Neuroblastoma Conference at the Hyatt Regency Chicago on June 26 to June 29, 2003.

Funded by a grant from the Kemper Educational and Charitable Fund and various donations, CNCF organized a group of 9 speakers including several of the leading Neuroblastoma researchers in this country who made presentations to the families.

The guest speakers were:

Dr. Susan Cohn, Children’s Memorial Hospital, Chicago
Dr. John Maris, Children’s Hospital of Philadelphia
Andy Olshan, PhD, University of North Carolina
Dr. Craig MacArthur, Children's Hospital of Southwest Florida
Dr. Clarke Anderson, Children's Hospital Los Angeles
Dr. Nai-Kong Cheung, Memorial Sloan Kettering Cancer Center
Dr. Alice Yu, University of California San Diego
Dr. Katherine Matthay, University of California San Francisco
Barbara Ann Hieb, Children's Hospital of Philadelphia

Over 100 parents, grandparents and patients from across the United States and Canada participated in this unique event. It provided an opportunity for the parents to learn more about this disease while their children played together in the “Kids Room.”