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Medical
Texts and Reference Books
Childhood Cancer: A Parent's Guide to
Solid Tumor Cancers,
2nd ed., by Honna Janes-Hodder and Nancy Keene. Covers neuroblastoma, Wilms,
liver cancers, soft tissue sarcomas, bone sarcomas, and retinoblastoma. 560
pages, 2002.
Contact
info@candlelighters.org for free copy.
FreeBooks4Doctors
Free, online,
full-text medical texts. The Cancer
Medicine 5th edition text, 2000, has comprehensive sections on childhood
cancer and childhood cancer survivorship issues.
Neuroblastoma, by Nai-Kong
V. Cheung and Susan
L. Cohn (Editors). Neuroblastoma reference work providing a concise
up-to-date reference for practitioners, students, and researchers. Springer,
298 pages, 2005.
Psychosocial Aspects of Pediatric
Oncology, by Shulamith
Kreitler and Myriam Weyl Ben Arush (Editors)
Comprehensive
text on the all-important psychosocial aspects of cancer in children. 470
pages, 2004.
Caring
for the Child with Cancer
Armfuls of Time, by Barbara Sourkes.
The
psychological experience of the child with a life threatening illness.
Cancer and Self-Help: Bridging the
Troubled Waters of Childhood Illness,
by Chesler, Mark A., PhD, and Barbara Chesney, The University of Wisconsin
Press, 1995.
Explains how
self-help groups are formed, how they function and recruit, and why they are
effective.
Cancer Pain Relief and Palliative Care
in Children
World Health
Organization, 1999, 76 pages (available in English and French; Spanish in
preparation).
A Child In Pain: How to Help, What to
Do, by Leora Kuttner,
PhD., Hartley & Marks, 1996.
Children With Cancer : Communication
and Emotions, by Anna
M. Van Veldhuizen and Bob F. Last, 1991.
Reports
the findings of a study (funded by the Dutch Cancer Society and the Foundation
for Pediatric Cancer Research) on the communication between parents and their
child with cancer.
Choices: The Most Complete Sourcebook
for Cancer Information,
by Marion Morra & Eve Potts, 2003.
Great information
on cancer basics: staging, medications, procedures, etc.
100 Questions & Answers About Your
Child's Cancer , by
William Carroll, MD.
This book is
an invaluable resource for anyone coping with the physical and emotional
turmoil of cancer. 160 pages, 2004.
Healing Images for Children: Teaching
Relaxation and Guided Imagery to Children Facing Cancer and Other Serious
Illnesses, by Nancy C.
Klein.
Muscle
relaxation, calm breathing, visual imagery, stories, music, humor, and positive
affirmations are techniques that enhance a child's healing process. Companion
items include:
Healing Images for Children Activity
Book: For Days When Quiet Activities Are Best
Healing Images for Children: Relax and
Imagine (Audio CD).
Helping the Fearful Child: A Parent’s
Guide to Everyday and Problem Anxieties, by Johnathan Kellerman, W.W. Norton, 1981.
Helping Your Children Cope with Your
Cancer: A Guide for Parents and Families, by Van Dernoot, Hatherleigh Co., 2002.
Real life
stories and experiences of over 20 parents who have been diagnosed with
cancer. Provides valuable advice on how
to discuss the impact of cancer on the whole family.
Home Care for the Seriously Ill Child:
A Manual for Parents,
by Modlow, D. Gay, and Ida M. Martinson, 2003. $18 from Children’s Hospice
International (703) 684-0330.
Living with Childhood Cancer: A
Practical Guide to Help Familiess Cope,
by Leigh Woznick and Carol D. Goodheart, American Psychological Association,
2001.
My Child Has Cancer: A Parent’s Guide
to Diagnosis, Treatment, and Survival (The Praeger Series on Healing and
Managing Injury and Disease),
by Della L. Howell, 2008.
The Relaxation Response by Herbert Benson, MD. and Miriam Z.
Klipper, Avon Books, 1990.
Relaxation
method of pain relief.
Shelter From the Storm: Caring for a
Child With a Life-threatening Condition, by Joanne Hilden, MD, Daniel R. Tobin, MD, and Karen
Lindsey.
Your Child has Cancer: A Guide to
Coping, by Joan Taksa
Rolsky, MSW.
Your Child in the Hospital: A Practical
Guide for Parents,
Nancy Keene. 3rd ed. Sebastopol,
CA: O'Reilly & Associates,
2002.
Informative
Books for Kids with Cancer and their Siblings
Order a FREE copy of the following from info@candlelighters.org.
Childhood Cancer: A Parent's Guide to
Solid Tumor Cancers,
2nd ed., by Honna Janes-Hodder and Nancy Keene. Covers neuroblastoma, Wilms,
liver cancers, soft tissue sarcomas, bone sarcomas, and retinoblastoma. 560
pages, 2002.
Childhood Cancer Survivors: A Practical
Guide to Your Future, 2nd
edition, by Kathy Ruccione, Nancy Keene, & Wendy Hobbie. Covers the issues of long-term survivorship:
medical late effects, relationships, overcoming employment or insurance
discrimination, maximizing health and follow-up schedules. 482 pages, 2000.
Chemo, Craziness & Comfort, My Book
about Childhood Cancer,
by Nancy Keene and Trevor Romain.
A 200 page
resource that provides practical advice for children diagnosed with cancer
between 6 and 12 years of age. Warm and funny illustrations and easy-to-read
text help the child (and parents) make sense of cancer and its treatment.
The Amazing Hannah, Look at Everything
I Can Do! By Amy and Dave Klett
Available in
English or Spanish, this 28 page picture book is written for the preschool (1
to 5 years) child who has been diagnosed with cancer. Through real-life photos,
children will be able to identify with Hannah's hospital stay, special friends,
tests, treatment and germ care.
Oliver's Story: For 'Sibs' of Kids with
Cancer, is a 40 page
illustrated book targeted for the 3 to 8 year old sibling of children diagnosed
with cancer. Illustrated by Mike Dodd and written through the eyes of his
six-year-old son Oliver, this resource focuses on the many questions that
siblings have when their brother or sister is diagnosed with cancer, and offers
constructive ways on how they can provide support. Also in Spanish.
Educational Issues
Educating the Child With Cancer: A
Guide for Parents and Teachers,
edited by Nancy Keene, 2003.
Available free
through Candlelighters
Negotiating the Special Education Maze:
A Guide for Parents and Teachers
3rd ed., by
Winifred Anderson, Stephen Chitwood, and Deidre Hayden, Woodbine House, 1997.
Keeping a Head in School: A Student’s
Book About Learning Abilities and Learning Disorders, by
Mel Levine, MD., Educator’s Publishing Service, Inc., 1991.
Suggestions for Teachers and School
Counselors. Write to:
The
Compassionate Friends. P.O. Box
3696, Oak Brook, IL 60522.
Grief Comes to Class: A Teacher's Guide
Gliko-Braden,
Majel. Centering Corporation, 1531
N. Saddle Creek Rd., Omaha, NE 68104.
(402) 553-1200.
Comprehensive
guide to grief in the classroom.
Finances During Medical Treatment
Finding the Money: A Guide to Paying
Your Medical Bills, by
Diane Pammenter Tolley, Tynsdale House Publishers, 2001. Available from BMT
Infonet
A book to help
families of people who need transplants.
One Small Sparrow: The Remarkable
Real-Life Drama of One Community's Compassionate Response to a Little Boy's
Life, by Jeffe
Leeland, Multnomah Books, 1995.
Available at
www.randomhouse.com/waterbook.
Contains
numerous ideas for methods to raise funds. Christian perspective.
A
Special Way to Care, by Sheila Peterson, 1988. Available from Friends of Karen, Box 217,
Croton Falls, NY 10519.
Free guide for
those who wish to provide financial/emotional support for families of ill
children.
Books
for Children Ages 4 to 8
Alex and the Amazing Lemonade Stand, by Alex, Jay and Liz Scott, 2004.
The true story
of NB fighter Alexandra Scott and her plan to help all kids with cancer!
Chemo Girl: Saving the World One
Treatment at a Time,
by Christina Richmond, 1997.
About a super
heroine named Chemo Girl.
H is for Hair Fairy: An Alphabet of
Encouragement for Kids (and Kids at Heart!) with Cancer, by Kim Martin and Wend Boomhower, 2005.
I Can Too!
Boys! by Christine Thomas, 2006.
An imagination
journey of what all kids with cancer can do – this one with Cancer Kid Boy.
Imagine a Rainbow: A Child’s Guide to
Soothing Pain, by
Brenda S. Miles, Ph. D. and Nicole Wong, 2006.
Beautiful
illustrations and verse help the child use imagery to refocus the mind away
from pain. A Note to Parents discusses
pain management and guides parents in teaching imagery and deep breathing.
Kathy's Hats: A Story of Hope, by Trudy Krisher, Concept Books, 1992.
Let's Talk About When Kids Have Cancer (The Let's Talk Library), by Melanie
Apel Gordon, Hazelden Information Education, 1999.
Little Tree: A Story for Children with
Serious Medical Illness, by
Joyce C. Mills, 2003.
An inspiring
story that also provides coping techniques such as visualization and relaxation
exercises.
My ABC Book of Cancer; by Shannon Chamberlain, 1991.
Ten year old Shannon tells about her fight with cancer in a
hope-filled ABC format. Also contains a
discussion on childhood cancer, a glossary, and reading list.
My Book for Kids With Cansur: A Child's
Autobiography of Hope,
by Jason Gaes
Written by
cancer child and illustrated by his brothers. Jason's parents also wrote a book
that is very informative: A Child's
Autobiography of Hope by Jason Gaes, Melius & Peterson Publishing, South Dakota, 1987.
My Brother Matthew, by Mary Thompson, Woodbine House,
1992.
Sammie's New Mask: A Coloring Book for
Friends of Children with Cancer
The National
Children's Cancer Society (www.nationalchildrenscancersociety.com) will send
multiple copies of this booklet to schools, etc. if requested on behalf of a
child with cancer.
What Is Cancer Anyway? Explaining
Cancer to Children of All Ages,
by Karen Carney, Dragonfly Publ, 1998.
You and Your Cancer: A Child's Guide, by Lynda Cranston, BC Decker, 2001.
Books
for Children Ages 9 to 12
Cancer (What's It Like?), by Angela Royston, Heinemann Library,
2005.
Drums, Girls and Dangerous Pie, by Jordan Sonnenblick.
A 13-year old
boy’s pesky 5-year old brother is diagnosed with leukemia.
Our Family Has Cancer, Too! by Christine Clifford, Jack Lindstrom
(Illustrator), Pfeifer-Hamilton Publ, 2002.
You and Your Cancer: A Child's Guide, by Lynda Cranston, B.C. Decker, 2001.
Books
for Young Adults
Cancer (Diseases and People), by Steven I. Benowitz, Enslow
Publishers, 1999.
The C-Word: Teenagers and Their
Families Living with Cancer,
by Elena Dorfman, 2nd ed., New Sage Press, 1993.
Inspirational
Books for Adults
The Anatomy of Hope: How People Prevail
in the Face of Illness,
by Jerome Groopman, MD., 2005.
Every Second Counts, by Lance Armstrong, 2004.
It’s Not About the Bike: My Journey
Back to Life, by Lance
Armstrong.
The story of a
world-class athlete nearly struck down by cancer who recovers and wins the Tour
de France.
I want to grow hair, I want to grow up,
I want to go to Boise,
by Erma Bombeck, 1989.
LiveSTRONG.
Lance Armstrong Foundation
Inspirational
stories from cancer survivors.
Love, Medicine, & Miracles, by Bernie Siegel, MD.
Peace, Love, & Healing, by Bernie Siegel, MD.
There’s No Place Like Hope: A Guide to
Beating Cancer in Mind Sized Bites - A Book of Hope, Help and Inspiration for
Cancer Patients and their Families,
by Vickie Girard.
When Bad Things Happen to Good People, by Harold S. Kushner
A Jewish rabbi
facing his own child's fatal illness asks, "Why me?
Books
for Siblings
Straight from the Siblings: Another
Look at the Rainbow,
by Gloria Murray (Photographer), Gerald G. Jamplosky (Editor), Celestial Arts, California, 1982
Written by
sixteen children who have brothers and sisters with a life-threatening illness.
What About Me? When Brothers and
Sisters Get Sick, by
Allan Peterkin, Frances Middendorf
When Molly Was in the Hospital: A Book
for Brother and Sisters of Hospitalized Children, by Debbie Duncan
Biographical/Families'
Stories
Amanda's Gift, by Scott MacLellan (1998).
Fighting Chance: Journeys through
Childhood Cancer. A
photo-journal by Harry Connolly, Tom Clancy, and Curt Civin, 1998.
This book follows
three children through treatment for childhood cancer.
I Never Signed Up for This!: An Upfront
Guide to Dealing with Cancer at a Young Age, by Katie Strumpf, 2006.
Written by a
25 year old who had cancer as a young girl.
I Will Sing Life: Voices from the Hole
in the Wall Gang Camp,
by Larry Berger and Dahlia Lithwick, 1992.
Kids with Courage: Thoughts
and Stories about Growing Up with Cancer, by Kelly and Maury Cotter. Board of Regents of the University of Wisconsin
System, 1998.
Ya Can’t Let Cancer Ruin Your Day: The
James Emails, by Syd
Birrell, 2005. Order at
www.greentrainbooks.com
This true
story about a young boy battling cancer will inspire you to seek life, love,
laughter and adventure. Foreword by Tom
Hanks.
End
of Life and Grief - Children’s Books
The Fall of Freddy the Leaf: A Story of
Life for All Ages, by
Leo Buscaglia, Holt, Rinehart and Winston, 1982.
I Had a Friend Named Peter: Talking to
Children about the Death of a Friend,
by Janice Cohn and Gail Ownes, 1987.
Last Week My Brother Anthony Died, by Martha Hickman and Randie Julien, Abingdon, Tennessee:
1984.
Lifetimes: The Beautiful Way to Explain
Death to Children, by
Bryan Mellonie, New York:
Bantam Books, 1983.
Painting the Sunsets with the Angels, by Vann Wesson and Moira Michaels,
1996.
A sister is
given hope after the death of her brother.
Thumpy's Story: A Story of Love and
Grief Shared, by Nancy
Dodge.
What is Death? by Etan Boritzer and Nancy Forest,
2000.
Simple
illustrations, like a child's colorful drawings, fill the pages of this book.
The book asks questions as a child might--the answers are sensible, including
different cultures.
The Empty Place: A Child’s Guide Through
Grief, by Roberta
Temes, PhD., New Horizon Press, 1992.
Explains and
describes feelings after the death of a sibling, such as the empty place in the
house, at the table, in a brother’s heart.
Gentle Willow: A Story for Children about Dying, by Joyce C. Mills, 1992.
This is a book
for children who may not survive their illness.
This comforting story about a tender-spirited tree and her forest
friends will also help children with the death of friends or family
members. A healing metaphor, it
addresses our feelings of sadness, love, disbelief, and anger, and provides
children with a transformational way of viewing dying.
On the Wings of a Butterfly: A Story
about Life and Death, by
Marilyn Maple, 1992.
The Everlasting Snowman, by Hunter Darden & Tamara Adams,
1997.
The Next Place by Warren Hanson, 1997.
An
inspirational journey of light and hope to a place where earthly hurts are left
behind.
What on Earth Do You Do When Someone
Dies? By Trevor
Romain,: Free Spirit Publishing, 1999.
Help children
understand and cope with grief.
When Good-bye is For Ever, by Lois Rock, 1969.
All through
our lives we learn to say many good-byes.
Some are easy; some are hard.
This book will help you find hope when you have to say the hardest
good-bye of all.
End
of Life and Grief – Books for Teens
I Remember You: A Grief Journal, by Laynee Wild, HarperCollins, 1994.
A journal for
recording written and photographic memories during the first year of mourning.
Straight Talk about Death for
Teenagers: How to Cope with Losing Someone You Love, by Earl Grollman, Beacon Press, 1993.
Teenagers Face to Face with
Bereavement, by Karen
Gravelle and Charles Haskins, J. Messner, 2000.
The
perspectives and experiences of seventeen teenagers coping with grief.
When a Friend Dies: A Book for Teens
about Grieving & Healing, by
Marilyn E.
Gootman and Pamela Espeland, 2005.
End
of Life and Grief – Books for Adults
The Next Place by Warren Hanson.
An
inspirational journey of light and hope to a place where earthly hurts are left
behind.
Bereavement: A Magazine of Hope and
Healing.
For a free
copy or to subscribe, call: Bereavement Publishing, Inc., (888) 604-4673
(HOPE).
Beyond Tears: Living After Losing a
Child, by Ellen
Mitchelll, Carol Barkin, Audrey Cohen, and Lorenza Colletti, 2005.
Children Mourning, Mourning Children, by Kenneth Doka, Hemisphere
Publications, 1995.
Closer to the Light: Learning from Near
Death Experiences of Children,
by
Melvin Morse,
MD. and Raymond Moody, New York: Villard Books,
1991.
Final Gifts: Understanding the Special
Awareness, Needs, and Communications of the Dying, by Maggie Callanan and Patricia
Kelley, Bantam Books, 1997.
From My Son’s Garden: A Personal Story
of Growth and Healing after the Loss of a Child, by Brenda Hahn Greene, 2002.
How Do We Tell the Children? A Step-by-Step
Guide for Helping Children Cope When Someone Dies, 3rd ed., by Dan Schaefer
and Christine Lyons and David Peretz, Newmarket
Press, 2002.
I Remember You: A Grief Journal, by
Laynee Gilbert, 1994.
A journal for
recording written and photographic memories during the first year of mourning.
Letters I Never Wrote, Conversations I
Never Had, by Charles
Ben Bissell, Tilden Press, 1983.
Living When a Loved One Has Died, by Earl A. Grollman, 1997.
On Children and Death, by Elisabeth Kubler-Ross, MD. New York: Macmillan, 1997.
Parental Loss of a Child, by
Therese Rando, PhD, Research Press, 1986.
Remember the Secret, by Elisabeth Kubler-Ross & Heath Preston, 1998.
Talking About Death: A Dialogue Between
Parent and Child, 3rd
ed., by Earl Grollman, Beacon Press,
1991.
The Grieving Garden: Living with the
Death of a Child, by
Suzanne Redfern and Susan K. Gilbert, 2008.
The Worst Loss: How Families Heat from
the Death of a Child, by
Barbara D. Rosof, 1995.
There Is a Rainbow Behind Every Dark
Cloud, by Gerald G.
Jampolsky.
Eleven
children share their experiences with terminal illness, 1979.
When the Bough Breaks: Forever After
the Death of a Son or Daughter, by
Judith
Bernstein, Andrews & McMeel, 1998.
Please
contact editors@nbhope.org with any
comments
Download printer-friendly version:
1316 Reading List