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NB Parent Handbook

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1316 Reading List

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Medical Texts and Reference Books

Childhood Cancer: A Parent's Guide to Solid Tumor Cancers, 2nd ed., by Honna Janes-Hodder and Nancy Keene. Covers neuroblastoma, Wilms, liver cancers, soft tissue sarcomas, bone sarcomas, and retinoblastoma. 560 pages, 2002.

Contact info@candlelighters.org for free copy.

 

FreeBooks4Doctors

Free, online, full-text medical texts. The Cancer Medicine 5th edition text, 2000, has comprehensive sections on childhood cancer and childhood cancer survivorship issues.

 

Neuroblastoma, by Nai-Kong V. Cheung and Susan L. Cohn (Editors). Neuroblastoma reference work providing a concise up-to-date reference for practitioners, students, and researchers. Springer, 298 pages, 2005.

 

Psychosocial Aspects of Pediatric Oncology, by Shulamith Kreitler and Myriam Weyl Ben Arush (Editors)

Comprehensive text on the all-important psychosocial aspects of cancer in children. 470 pages, 2004.

 

Caring for the Child with Cancer

Armfuls of Time, by Barbara Sourkes.

The psychological experience of the child with a life threatening illness.

 

Cancer and Self-Help: Bridging the Troubled Waters of Childhood Illness, by Chesler, Mark A., PhD, and Barbara Chesney, The University of Wisconsin Press, 1995.

Explains how self-help groups are formed, how they function and recruit, and why they are effective.

 

Cancer Pain Relief and Palliative Care in Children

World Health Organization, 1999, 76 pages (available in English and French; Spanish in preparation).

 

A Child In Pain: How to Help, What to Do, by Leora Kuttner, PhD., Hartley & Marks, 1996.

 

 

Children With Cancer : Communication and Emotions, by Anna M. Van Veldhuizen and Bob F. Last, 1991.

Reports the findings of a study (funded by the Dutch Cancer Society and the Foundation for Pediatric Cancer Research) on the communication between parents and their child with cancer.

 

Choices: The Most Complete Sourcebook for Cancer Information, by Marion Morra & Eve Potts, 2003.

Great information on cancer basics: staging, medications, procedures, etc.

 

100 Questions & Answers About Your Child's Cancer , by William Carroll, MD.

This book is an invaluable resource for anyone coping with the physical and emotional turmoil of cancer. 160 pages, 2004.

 

Healing Images for Children: Teaching Relaxation and Guided Imagery to Children Facing Cancer and Other Serious Illnesses, by Nancy C. Klein.

Muscle relaxation, calm breathing, visual imagery, stories, music, humor, and positive affirmations are techniques that enhance a child's healing process. Companion items include:

Healing Images for Children Activity Book: For Days When Quiet Activities Are Best

Healing Images for Children: Relax and Imagine (Audio CD).

 

Helping the Fearful Child: A Parent’s Guide to Everyday and Problem Anxieties, by Johnathan Kellerman, W.W. Norton, 1981.

 

Helping Your Children Cope with Your Cancer: A Guide for Parents and Families, by Van Dernoot, Hatherleigh Co., 2002.

Real life stories and experiences of over 20 parents who have been diagnosed with cancer.  Provides valuable advice on how to discuss the impact of cancer on the whole family.

 

Home Care for the Seriously Ill Child: A Manual for Parents, by Modlow, D. Gay, and Ida M. Martinson, 2003. $18 from Children’s Hospice International (703) 684-0330.

 

Living with Childhood Cancer: A Practical Guide to Help Familiess Cope, by Leigh Woznick and Carol D. Goodheart, American Psychological Association, 2001.

 

My Child Has Cancer: A Parent’s Guide to Diagnosis, Treatment, and Survival (The Praeger Series on Healing and Managing Injury and Disease), by Della L. Howell, 2008.

 

The Relaxation Response by Herbert Benson, MD. and Miriam Z. Klipper, Avon Books, 1990.

Relaxation method of pain relief.

 

Shelter From the Storm: Caring for a Child With a Life-threatening Condition, by Joanne Hilden, MD, Daniel R. Tobin, MD, and Karen Lindsey.

 

Your Child has Cancer: A Guide to Coping, by Joan Taksa Rolsky, MSW.

 

Your Child in the Hospital: A Practical Guide for Parents, Nancy Keene. 3rd ed. Sebastopol, CA: O'Reilly & Associates, 2002.

 

Informative Books for Kids with Cancer and their Siblings

Order a FREE copy of the following from info@candlelighters.org.

 

Childhood Cancer: A Parent's Guide to Solid Tumor Cancers, 2nd ed., by Honna Janes-Hodder and Nancy Keene. Covers neuroblastoma, Wilms, liver cancers, soft tissue sarcomas, bone sarcomas, and retinoblastoma. 560 pages, 2002.

 

Childhood Cancer Survivors: A Practical Guide to Your Future, 2nd edition, by Kathy Ruccione, Nancy Keene, & Wendy Hobbie.  Covers the issues of long-term survivorship: medical late effects, relationships, overcoming employment or insurance discrimination, maximizing health and follow-up schedules.  482 pages, 2000.

 

Chemo, Craziness & Comfort, My Book about Childhood Cancer, by Nancy Keene and Trevor Romain.

A 200 page resource that provides practical advice for children diagnosed with cancer between 6 and 12 years of age. Warm and funny illustrations and easy-to-read text help the child (and parents) make sense of cancer and its treatment.

 

The Amazing Hannah, Look at Everything I Can Do!  By Amy and Dave Klett

Available in English or Spanish, this 28 page picture book is written for the preschool (1 to 5 years) child who has been diagnosed with cancer. Through real-life photos, children will be able to identify with Hannah's hospital stay, special friends, tests, treatment and germ care.

 

Oliver's Story: For 'Sibs' of Kids with Cancer, is a 40 page illustrated book targeted for the 3 to 8 year old sibling of children diagnosed with cancer. Illustrated by Mike Dodd and written through the eyes of his six-year-old son Oliver, this resource focuses on the many questions that siblings have when their brother or sister is diagnosed with cancer, and offers constructive ways on how they can provide support. Also in Spanish.

 

Educational Issues

Educating the Child With Cancer: A Guide for Parents and Teachers, edited by Nancy Keene, 2003.

Available free through Candlelighters

 

Negotiating the Special Education Maze: A Guide for Parents and Teachers

3rd ed., by Winifred Anderson, Stephen Chitwood, and Deidre Hayden, Woodbine House, 1997.

 

Keeping a Head in School: A Student’s Book About Learning Abilities and Learning Disorders, by  Mel Levine, MD., Educator’s Publishing Service, Inc., 1991.

 

Suggestions for Teachers and School Counselors.  Write to:

The Compassionate Friends. P.O. Box 3696, Oak Brook, IL 60522.

 

Grief Comes to Class: A Teacher's Guide

Gliko-Braden, Majel. Centering Corporation, 1531 N. Saddle Creek Rd., Omaha, NE 68104. (402) 553-1200.

Comprehensive guide to grief in the classroom.

 

Finances During Medical Treatment

Finding the Money: A Guide to Paying Your Medical Bills, by Diane Pammenter Tolley, Tynsdale House Publishers, 2001. Available from BMT Infonet

A book to help families of people who need transplants.

 

One Small Sparrow: The Remarkable Real-Life Drama of One Community's Compassionate Response to a Little Boy's Life, by Jeffe Leeland, Multnomah Books, 1995.

Available at www.randomhouse.com/waterbook.

Contains numerous ideas for methods to raise funds. Christian perspective.

 

A Special Way to Care, by Sheila Peterson, 1988.  Available from Friends of Karen, Box 217, Croton Falls, NY 10519.

Free guide for those who wish to provide financial/emotional support for families of ill children.

 

 

Books for Children Ages 4 to 8

Alex and the Amazing Lemonade Stand, by Alex, Jay and Liz Scott, 2004.

The true story of NB fighter Alexandra Scott and her plan to help all kids with cancer!

 

Chemo Girl: Saving the World One Treatment at a Time, by Christina Richmond, 1997.

About a super heroine named Chemo Girl.

 

H is for Hair Fairy: An Alphabet of Encouragement for Kids (and Kids at Heart!) with Cancer, by Kim Martin and Wend Boomhower, 2005.

 

I Can Too! Boys! by Christine Thomas, 2006.

An imagination journey of what all kids with cancer can do – this one with Cancer Kid Boy.

 

Imagine a Rainbow: A Child’s Guide to Soothing Pain, by Brenda S. Miles, Ph. D. and Nicole Wong, 2006.

Beautiful illustrations and verse help the child use imagery to refocus the mind away from pain.  A Note to Parents discusses pain management and guides parents in teaching imagery and deep breathing.

 

Kathy's Hats: A Story of Hope, by Trudy Krisher, Concept Books, 1992.

 

Let's Talk About When Kids Have Cancer (The Let's Talk Library), by Melanie Apel Gordon, Hazelden Information Education, 1999.

 

Little Tree: A Story for Children with Serious Medical Illness, by Joyce C. Mills, 2003.

An inspiring story that also provides coping techniques such as visualization and relaxation exercises.

 

My ABC Book of Cancer; by Shannon Chamberlain, 1991.

Ten year old Shannon tells about her fight with cancer in a hope-filled ABC format.  Also contains a discussion on childhood cancer, a glossary, and reading list.

 

My Book for Kids With Cansur: A Child's Autobiography of Hope, by Jason Gaes

Written by cancer child and illustrated by his brothers. Jason's parents also wrote a book that is very informative: A Child's Autobiography of Hope by Jason Gaes, Melius & Peterson Publishing, South Dakota, 1987.

 

My Brother Matthew, by Mary Thompson, Woodbine House, 1992.

 

Sammie's New Mask: A Coloring Book for Friends of Children with Cancer

The National Children's Cancer Society (www.nationalchildrenscancersociety.com) will send multiple copies of this booklet to schools, etc. if requested on behalf of a child with cancer.

 

What Is Cancer Anyway? Explaining Cancer to Children of All Ages, by Karen Carney, Dragonfly Publ, 1998.

 

You and Your Cancer: A Child's Guide, by Lynda Cranston, BC Decker, 2001.

 

Books for Children Ages 9 to 12

Cancer (What's It Like?), by Angela Royston, Heinemann Library, 2005.

 

Drums, Girls and Dangerous Pie, by Jordan Sonnenblick.

A 13-year old boy’s pesky 5-year old brother is diagnosed with leukemia.

 

Our Family Has Cancer, Too! by Christine Clifford, Jack Lindstrom (Illustrator), Pfeifer-Hamilton Publ, 2002.

 

You and Your Cancer: A Child's Guide, by Lynda Cranston, B.C. Decker, 2001.

 

Books for Young Adults

Cancer (Diseases and People), by Steven I. Benowitz, Enslow Publishers, 1999.

 

The C-Word: Teenagers and Their Families Living with Cancer, by Elena Dorfman, 2nd ed., New Sage Press, 1993.

 

Inspirational Books for Adults

The Anatomy of Hope: How People Prevail in the Face of Illness, by Jerome Groopman, MD., 2005.

 

Every Second Counts, by Lance Armstrong, 2004.

 

It’s Not About the Bike: My Journey Back to Life, by Lance Armstrong.

The story of a world-class athlete nearly struck down by cancer who recovers and wins the Tour de France.

 

I want to grow hair, I want to grow up, I want to go to Boise, by Erma Bombeck, 1989.

 

LiveSTRONG.  Lance Armstrong Foundation

Inspirational stories from cancer survivors.

 

Love, Medicine, & Miracles, by Bernie Siegel, MD.

 

Peace, Love, & Healing, by Bernie Siegel, MD.

 

There’s No Place Like Hope: A Guide to Beating Cancer in Mind Sized Bites - A Book of Hope, Help and Inspiration for Cancer Patients and their Families, by Vickie Girard.

 

When Bad Things Happen to Good People, by Harold S. Kushner

A Jewish rabbi facing his own child's fatal illness asks, "Why me?

 

Books for Siblings

Straight from the Siblings: Another Look at the Rainbow, by Gloria Murray (Photographer), Gerald G. Jamplosky (Editor), Celestial Arts, California, 1982

Written by sixteen children who have brothers and sisters with a life-threatening illness.

 

What About Me? When Brothers and Sisters Get Sick, by Allan Peterkin, Frances Middendorf

 

When Molly Was in the Hospital: A Book for Brother and Sisters of Hospitalized Children, by Debbie Duncan

 

Biographical/Families' Stories

Amanda's Gift, by Scott MacLellan (1998).

 

Fighting Chance: Journeys through Childhood Cancer. A photo-journal by Harry Connolly, Tom Clancy, and Curt Civin, 1998.

This book follows three children through treatment for childhood cancer.

 

I Never Signed Up for This!: An Upfront Guide to Dealing with Cancer at a Young Age, by Katie Strumpf, 2006.

Written by a 25 year old who had cancer as a young girl.

 

I Will Sing Life: Voices from the Hole in the Wall Gang Camp, by Larry Berger and Dahlia Lithwick, 1992.

 

Kids with Courage: Thoughts and Stories about Growing Up with Cancer, by Kelly and Maury Cotter.  Board of Regents of the University of Wisconsin System, 1998.

 

Ya Can’t Let Cancer Ruin Your Day: The James Emails, by Syd Birrell, 2005.  Order at www.greentrainbooks.com

This true story about a young boy battling cancer will inspire you to seek life, love, laughter and adventure.  Foreword by Tom Hanks.

 

End of Life and Grief - Children’s Books

The Fall of Freddy the Leaf: A Story of Life for All Ages, by Leo Buscaglia, Holt, Rinehart and Winston, 1982.

 

I Had a Friend Named Peter: Talking to Children about the Death of a Friend, by Janice Cohn and Gail Ownes, 1987.

 

Last Week My Brother Anthony Died, by Martha Hickman and Randie Julien, Abingdon, Tennessee: 1984.

 

Lifetimes: The Beautiful Way to Explain Death to Children, by Bryan Mellonie, New York: Bantam Books, 1983.

 

Painting the Sunsets with the Angels, by Vann Wesson and Moira Michaels, 1996.

A sister is given hope after the death of her brother.

 

Thumpy's Story: A Story of Love and Grief Shared, by Nancy Dodge.

 

What is Death? by Etan Boritzer and Nancy Forest, 2000.

Simple illustrations, like a child's colorful drawings, fill the pages of this book. The book asks questions as a child might--the answers are sensible, including different cultures.

 

The Empty Place: A Child’s Guide Through Grief, by Roberta Temes, PhD., New Horizon Press, 1992. 

Explains and describes feelings after the death of a sibling, such as the empty place in the house, at the table, in a brother’s heart.

 

Gentle Willow: A Story for Children about Dying, by Joyce C. Mills, 1992.

This is a book for children who may not survive their illness.  This comforting story about a tender-spirited tree and her forest friends will also help children with the death of friends or family members.  A healing metaphor, it addresses our feelings of sadness, love, disbelief, and anger, and provides children with a transformational way of viewing dying.

 

On the Wings of a Butterfly: A Story about Life and Death, by Marilyn Maple, 1992.

 

The Everlasting Snowman, by Hunter Darden &  Tamara Adams, 1997.

 

 

The Next Place by Warren Hanson, 1997.

An inspirational journey of light and hope to a place where earthly hurts are left behind. 

 

What on Earth Do You Do When Someone Dies? By Trevor Romain,: Free Spirit Publishing, 1999.

Help children understand and cope with grief.

 

When Good-bye is For Ever, by Lois Rock, 1969. 

All through our lives we learn to say many good-byes.  Some are easy; some are hard.  This book will help you find hope when you have to say the hardest good-bye of all.

 

End of Life and Grief – Books for Teens

I Remember You: A Grief Journal, by Laynee Wild, HarperCollins, 1994.

A journal for recording written and photographic memories during the first year of mourning.

 

Straight Talk about Death for Teenagers: How to Cope with Losing Someone You Love, by Earl Grollman, Beacon Press, 1993.

 

Teenagers Face to Face with Bereavement, by Karen Gravelle and Charles Haskins, J. Messner, 2000.

The perspectives and experiences of seventeen teenagers coping with grief.

 

When a Friend Dies: A Book for Teens about Grieving & Healing, by

Marilyn E. Gootman and Pamela Espeland, 2005.

 

End of Life and Grief – Books for Adults

The Next Place by Warren Hanson.

An inspirational journey of light and hope to a place where earthly hurts are left behind. 

 

Bereavement: A Magazine of Hope and Healing.

For a free copy or to subscribe, call: Bereavement Publishing, Inc., (888) 604-4673 (HOPE).

 

Beyond Tears: Living After Losing a Child, by Ellen Mitchelll, Carol Barkin, Audrey Cohen, and Lorenza Colletti, 2005.

 

Children Mourning, Mourning Children, by Kenneth Doka, Hemisphere Publications, 1995.

 

 

Closer to the Light: Learning from Near Death Experiences of Children, by

Melvin Morse, MD. and Raymond Moody, New York: Villard Books, 1991.

 

Final Gifts: Understanding the Special Awareness, Needs, and Communications of the Dying, by Maggie Callanan and Patricia Kelley, Bantam Books, 1997.

 

From My Son’s Garden: A Personal Story of Growth and Healing after the Loss of a Child, by Brenda Hahn Greene, 2002.

 

How Do We Tell the Children? A Step-by-Step Guide for Helping Children Cope When Someone Dies, 3rd ed., by Dan Schaefer and Christine Lyons and David Peretz, Newmarket Press, 2002.

 

I Remember You: A Grief Journal, by Laynee Gilbert, 1994.

A journal for recording written and photographic memories during the first year of mourning.

 

Letters I Never Wrote, Conversations I Never Had, by Charles Ben Bissell, Tilden Press, 1983.

 

Living When a Loved One Has Died, by Earl A. Grollman, 1997.

 

On Children and Death, by Elisabeth Kubler-Ross, MD. New York: Macmillan, 1997.

 

Parental Loss of a Child, by Therese Rando, PhD, Research Press, 1986.

 

Remember the Secret, by Elisabeth Kubler-Ross & Heath Preston, 1998.

 

Talking About Death: A Dialogue Between Parent and Child, 3rd ed.,  by Earl Grollman, Beacon Press, 1991.

 

The Grieving Garden: Living with the Death of a Child, by Suzanne Redfern and Susan K. Gilbert, 2008.

The Worst Loss: How Families Heat from the Death of a Child, by Barbara D. Rosof, 1995.

 

There Is a Rainbow Behind Every Dark Cloud, by Gerald G. Jampolsky.

Eleven children share their experiences with terminal illness, 1979.

 

When the Bough Breaks: Forever After the Death of a Son or Daughter, by

Judith Bernstein, Andrews & McMeel, 1998.

 

 

Please contact editors@nbhope.org with any comments

 



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