Donna Ludwinski

Member since: 07-25-2006
Last visited: 12-04-2008
Timezone: -6.00 GMT
Location: Northern Minnesota
Occupation: stay home mom & chemical engineer
Total Posts: 68
Post Rank: 1

About Donna Ludwinski

Married to Paul 29 years, parents of Erik (23), Karl (19), Lesa (13), Aron (9) Our son Erik: NB4 6 years old Dec 1991 rt adrenal, nmyc non-amp, 1p del (9 rounds chemo, surgery, autologous bone marrow transplant at DFCI, no accutane, no antibodies, NED 13 years) Relapse (bone--multiple sites, marrow-- packed with NB) at 20 years old May 2005 Treated at Fargo ND and U of MN: 6 rounds of chemo (2 dox/vin/cyclo and 4 topo/ cyclo) First person ever stem-cell transplanted with total marrow irradiation conditioning (TMI) Nov 2005; chemo for SCT busulfan/thiotepa/melphalan; accutane (6 months) second relapse: hu14.18-IL2 two rounds, progressed, 3 cycles irino+temo, response, quit treatment for 4 months, progressed, 2 cycles oral fenretinide, progressed, 6 more irino+temo, response--clear scans, BMX+, 3 months (1 cycle) COMBAT oral combo (accutane, celebrex, etoposide, temozolomide).

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